Tuesday, March 7, 2017

Down the rabbit hole

David's memory is either gone or taking a break since Saturday.  Either way he left his car doors wide open as well as the garage door to the house and coat closet, forgot how to get to the hospital, forgot what to call his iPhone and how to do most of the stuff on it, did not go to get bloodwork at the Hematology associates place where we'd been going but instead went to Mary Washington lab with no lab sheet and finally did not go to his medical apt with Dr. Clemo.  Since he told me that he had bloodwork done and a cotton ball taped to his arm, I called the Hematology Associates for results, was told he was a no show two days in a row and if he is having so many issues maybe it is a stroke and I should take him to the ER immediately.  Well, I decided not to do that and eventually got the info about where he actually went for the bloodwork..  He has NO other symptoms of stroke.  I did wonder if the platelets were so low that he had a brain bleed but cannot talk with the P.A., much less an actual physician.  David's arms are a mass of black and blue bruises.  His face and legs also have bruises.  I get it; his blood won't clot.  I would REALLY like to know the level and hope that the Mary Washington lab did that test and has those numbers for us.  Dr. Clemo's nurse did not call me back either so we are in an information whiteout.  I will place new calls tomorrow morning before I go to teach and keep my phone on in the classroom.
In his current condition I do not think that I can go to TX.  This is terribly upsetting to me but David really seems to need me to help him with daily life.  His ability to communicate is limited.  He searches for words and concepts a lot.  He played a game that Lori recommended and seemed to enjoy it. It was short.  He played a game of Chess, won and decided that was enough of that.  Oh, and his neurologist is leaving and is sending his patients back to their primary care doctors for interim care........if the primary care doctor could handle it then why did she refer David to the specialist?
Just in case, on the outside chance, that I am able to go to TX, I'm going to pack the camera equipment for Sabrina distributing the weight over a couple of suitcases and color my hair tonight.  It will get the camera equipment out of laundry baskets on the kitchen floor and my hair could use freshening anyway.
He seems to be doing something with his iPad.  I am amazed that he can use it.  His hands usually tremble and they are rock steady using a stylus.

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